Secure Data Environment (SDE): Public Involvement Survey

Descriptions

The Sub-National Secure Data Environment is a national programme managed by NHS England involving eleven regions across England. The initiative is a wide-ranging socio-technical and innovation programme aimed at improving access to, and the use of health data in research and development (R&D.) The North East and North Cumbria (NENC) region was confirmed as one of the 'Sub-national Secure Data Environment' (SNSDE) regions in December 2022, with the initial programme running until 31st March 2025. The SDE Programme requires a survey of public attitudes and perception on key aspects of the Secure Data Environment (SDE). This requires the supplier to plan and carry out a survey with an appropriate sample of individuals across NENC with representation from all demographics. The survey will provide clear evidence of public attitudes towards matters associated with SDE at this stage of the programme, allowing the programme team to evaluate any change in the public's perception over time as the programme develops and progresses. The survey will be completed as an on-street piece of research, resulting in the preparation of a report across the demographic groups and provision of a baseline of data. The report will include both quantitative and qualitative issues.