Federated Data Platform - Market Engagement Phase

Descriptions

The Patient Lifestyle and Disease Data Interactium (PaLaDIn) project, an ambitious Innovative Health Initiative (IHI) funded project (with contribution from The FSHD Society, TREAT-NMD and UK Research and Innovation (UKRI), has been launched to drive innovative real world data collection from patients with rare neuromuscular diseases (NMDs). Project PaLaDIn is committed to enhancing healthcare outcomes for individuals with neuromuscular and other rare diseases through the development of 'The Interactium®,' a global, patient-centric data platform This market engagement exercise seeks the views and opinions of those organisations that may be interested in delivering the Services. The scope of this market engagement is provided within the draft service specification. This exercise and any subsequent responses are in no way legally binding on any party. Participation in the engagement exercise is not a mandatory requirement for participating in any potential future procurement; however, responses received will assist to inform Treat- NMD as to the level of interest from the market and will be used to evidence a decision as to whether or not to undertake a competitive procurement. The Market Engagement Questionnaire and current Service Specifications can be downloaded from SAP Ariba Portal at the below link: https://discovery.ariba.com/rfx/22946826 Please return your completed MEQ through the Portal no later than 5pm on 22nd April 2025.