Supply of a Rare Disease Recruitment Portal (RDRP)

Descriptions

Newcastle University are looking to procure a Rare Disease Trial Recruitment Portal (RDRP) as part of the Rare Disease Trial Acceleration Platform (RD-TAP) project, funded by LifeArc. The LifeArc Centre for Acceleration of Rare Disease Trials (www.lifearc.org/project/lifearc-translational-centres-for-rare-diseases) brings together a consortium of three universities from across the UK. Newcastle University, Queens University Belfast, and University of Birmingham are pooling their expertise in a partnership coordinated by Professor David Jones, Professor of Liver Immunology at Newcastle University. Globally, there are more than 300 million people living with rare diseases (RD), yet clinical trials for them are often challenging and can be a major limiting step in getting new treatments to patients. This £12M centre will develop a UK '4 nations' approach to deliver trials of new treatments using 'one stop', patient friendly models with a focus on improving the efficiency of RD trials and increasing the number of opportunities for patients to take part. The research team will create a RDRP and will design and deliver trials in partnership with patients. This will speed up the delivery of clinical trials for people with RDs and enable more rapid approval of new therapies for use in the NHS. The contract reference is NU/2053. Should you be interested this project, please email Ola.Smith@newcastle.ac.uk and Jessica.Watson@newcastle.ac.uk for the full briefing document. The deadline for expressing an interest is 21st November 2024 at 2pm GMT. To do so, please email Ola.Smith@newcastle.ac.uk; Jessica.Watson@newcastle.ac.uk Please note that Newcastle University is not a contracting authority for the purposes of the UK Public Contracts Regulations 2015 and the Concession Contracts Regulations 2016, this will not apply to this Prior Information Notice or any subsequent tender activity as an outcome of this engagement.